This study looks at the role of community health workers (CHWs) in helping adolescents and young adults with sickle cell disease transition from pediatric to adult care. Interviews with CHWs and their supervisors highlighted three main points: (1) CHWs supported the transition to adulthood for patients, (2) they built trusting relationships with patients, and (3) the role … [Read more...] about Community health workers supporting emerging adults with sickle cell disease
Sickle Cell Anemia
Cohort National CHW Training Program – Sickle Cell Disease
The Sickle Cell Disease Lay Program (SCDLP) offers a five-week training program for aspiring Community Health Workers (CHWs) focused on Sickle Cell Disease (SCD). The program provides classroom and hands-on skills training to help participants gain employment as SCD health workers, covering essential topics like Primary Health Care, Communication, Patient Advocacy, and Sickle … [Read more...] about Cohort National CHW Training Program – Sickle Cell Disease
A randomised controlled provider-blinded trial of community health workers in sickle cell anaemia: effects on haematologic variables and hydroxyurea adherence
In this study, researchers aimed to assess how case management impacts Hydroxyurea use and adherence for sickle cell anemia. Researchers recruited 224 patients with sickle cell anemia from Virginia and North Carolina, United States. Participants were assigned to one of two study groups. Both groups received standardized care and prescribing methods. However, the treatment group … [Read more...] about A randomised controlled provider-blinded trial of community health workers in sickle cell anaemia: effects on haematologic variables and hydroxyurea adherence
Feasibility of establishing a network of community health workers to support care of people with sickle cell disease in Kumasi, Ghana
Sickle cell disease (SCD) remains a common, yet highly neglected, non-communicable disease. This study assessed the interest in and feasibility of establishing a network of CHWs to support care of people with SCD in Kumasi, Ghana. Using qualitative research methods, researchers assessed three primary themes from the data: (1) support by CHWs for people with SCD; (2) using … [Read more...] about Feasibility of establishing a network of community health workers to support care of people with sickle cell disease in Kumasi, Ghana