Authors: Cyleste C Collins, Mona Shediac-Rizkallah, Jacqueline Dolata, Erika Hood, Elodie Nonguierma, Daryl Thornton
Community health workers (CHWs), particularly those with personal experience as patients with hypertension, were trained as lay health advisors (LHAs) for a research study in Cleveland, Ohio. Despite learning much from the training, LHAs felt used and excluded from decision-making by project gvgfleadership. The study, which ended prematurely due to participant recruitment issues, left LHAs feeling that their reputations were damaged. The experience led LHAs to express reluctance to participate in research in the future. The findings highlight the importance of clear communication, genuine inclusion of LHAs as research partners, and recognition of their expertise.
Link: They should’ve talked to us more”: lay health advisors’ experiences with community-engaged hypertension research
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Resource Topic: Hypertension
Resource Type: Qualitative
Year: 2024
Region:
Country: United States of America
Publisher May Restrict Access: No