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They should’ve talked to us more”: lay health advisors’ experiences with community-engaged hypertension research

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Authors: Cyleste C Collins, Mona Shediac-Rizkallah, Jacqueline Dolata, Erika Hood, Elodie Nonguierma, Daryl Thornton

Community health workers (CHWs), particularly those with personal experience as patients with hypertension, were trained as lay health advisors (LHAs) for a research study in Cleveland, Ohio. Despite learning much from the training, LHAs felt used and excluded from decision-making by project gvgfleadership. The study, which ended prematurely due to participant recruitment issues, left LHAs feeling that their reputations were damaged. The experience led LHAs to express reluctance to participate in research in the future. The findings highlight the importance of clear communication, genuine inclusion of LHAs as research partners, and recognition of their expertise.

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Link: They should’ve talked to us more”: lay health advisors’ experiences with community-engaged hypertension research

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Resource Topic: Hypertension

Resource Type: Qualitative

Year: 2024

Region:

Country: United States of America

Publisher May Restrict Access: No

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