Program context: Serving patients with rare diseases presents significant challenges to well-developed health systems. In remote and underserved settings, patients with rare diseases are often neglected altogether. This case study shows how a community health worker approach, using “community advocates,” improves patient care and outcomes in even the most remote and hard-to-reach settings.
The achievement of universal health coverage requires the availability of trained health workers at the community level. CHWs are an essential element of the community health workforce; yet, to harness the potential of CHWs to extend health services to poor and marginalized populations, there is an urgent need to optimize CHW programs.